Clinical Trials

Learn more about the DevelopAKUre clinical trials

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NAC

Learn more about the UK National AKU Centre

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Self-Management

Get information on managing pain, diet and exercise 

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Resources

Download useful resources from the AKU Society

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AKU Blog

UK Genetic Disorders Leadership Symposium
29-Mar-2017

On Friday 10th and Saturday 11th March Lesley attended the 3rd UK G.. ...more

AKU Society's Sixth Patient Workshop
22-Mar-2017

Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue tha.. ...more

London Marathon 2017 - Meet the Runner
15-Mar-2017

The London Marathon is one of the most prestigious running events in the world. This year we are.. ...more

Rare Disease Day 2017
10-Mar-2017

Every year people from all over the word come together to celebrate Rare Disease Day. A day designed.. ...more

Cambridge Half Marathon 2017
06-Mar-2017

The AKU Society had seven places in this year’s Cambridge Half Marathon. With each of.. ...more