Sister Societies

Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.




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AKU Blog

Findacure DareforRare Firewalk
22-Feb-2017

On Saturday 18th March our Admin & Events Officer Robin took part in the Findacure (https://.. ...more

Rare Disease Day Preview
15-Feb-2017

It’s now only 2 weeks until Rare Disease Day! On the last day of February every year, coun.. ...more

AKU Society Annual Review 2016
08-Feb-2017

The AKU Society is excited to announce that our 2016 Annual Review is now available for.. ...more

Cambridge Half Marathon: Meet The Runners!
24-Jan-2017

March 5th is the date of the Cambridge Half Marathon. We have 9 runners taking part and in this .. ...more

Findacure Firewalk for AKU! A New Exciting Fundraising Opportunity.
18-Jan-2017

On 18th February the AKU Society will be taking part in the Findacure Cambridge Firewalk! Firewa.. ...more