DevelopAKUre Blog

  • DevelopAKUre 9th International Workshop on AKU

    Date: 22-Oct-2015

    Last week the DevelopAKUre consortium attended the 9th international workshop on AKU in Copenhagen. It was the one-year anniversary of AKU patient Robert Gregory’s death and we started the day by remembering Robert and all that he achieved for AKU patients. Robert was a massive driving for.. ...more

  • Introducing PSR Orphan Experts

    Date: 01-Oct-2015

    One of our partners in the DevelopAKUre consortium is an organisation called PSR Orphan Experts. PSR Orphan Experts ( are located in Hoofddorp, the Netherlands, and are currently working on the SONIA 2 clinical trial. Their team consists of one Project.. ...more

  • The University of Siena's Role in DevelopAKUre

    Date: 02-Sep-2015

    Our research group is led by Prof. Annalisa Santucci and is located within the University of Siena (, Department of Biotechnology, Chemistry and Pharmacy. We are one of the three Academic members of the DevelopAKUre Consortium. We have great expertise in the study of proteins rel.. ...more

  • Second AKU Patient Day in Jordan

    Date: 18-Jun-2015

    On Saturday 6th June'the Jordanian AKU society organised the second AKU patient day. Many of the patients who attended are taking part in the DevelopAKUre clinical trial at the Slovakian site in Piestany. In today's blog Dr. Mohammed, Chairman of the Jordanian AKU Society, 'gives us a report on .. ...more



Welcome To DevelopAKUre

DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).

DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.


DevelopAKUre Blog

Introducing PhD Student Brendan Norman

In this week's blog, we talk to Brendan Norman, a PhD student at the University Of Liverpool, ab.. ...more

Introducing PhD Student Leah Taylor

In today's blog, we Introduce Leah Taylor, a PhD student who is exploring a way of analysing dis.. ...more