DevelopAKUre Blog

  • The AKU Communities

    Date: 09-Apr-2013

    Our AKU online communities are excellent opportunities to speak and meet others affected by AKU, whether you're interested in the DevelopAKUre programme or not. Living with a rare disease can be hard; many often report feeling lonely and isolated due to the lack of understanding surrounding thei.. ...more

  • Previous Research

    Date: 29-Mar-2013

    Nitisinone has been found in early clinical trials to reduce homogentisic acid (HGA) levels by 95%, resulting in patients reporting significantly reduced joint and back pain. (2) Researchers believe that if nitisinone is administered early enough it could prevent the toxic acid from building up,.. ...more



Welcome To DevelopAKUre

DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).

DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.


DevelopAKUre Blog

Introducing PhD Student Brendan Norman

In this week's blog, we talk to Brendan Norman, a PhD student at the University Of Liverpool, ab.. ...more

Introducing PhD Student Leah Taylor

In today's blog, we Introduce Leah Taylor, a PhD student who is exploring a way of analysing dis.. ...more